I have debated writing this post for a few months now. It is not my intent to whine, complain, or cause discouragement! God has been SO GOOD to us while on this journey! However, many have asked me how Gabe is “really” doing? So I thought I’d share with you, what he probably won’t tell you himself.
Often I’ve listened to my husband talk to someone inquiring after his health. He will lightly smooth his struggles over with a butter knife, making it seem as though everything was as sweet as jam. It takes every ounce of self control within me to not enter those conversations mouth first, revealing what he’s REALLY going through!
“Gabe, why do you glaze over everything? Why aren’t you sharing what you are really going through?”
“Care, if I’m not positive when I talk to people, I won’t think positive when I’m alone.”
So here I am, sharing to a world of readers (all 30 of you) what a cancer patient (at least mine) won’t tell you.
1. They feel sick more than they feel normal. Despite being on two different anti-nausea medications, my husband feels sick a lot. Thankfully, he’s been able to eat, and the steroids have made him even gain a few pounds. He is not thrilled by that, but doctor’s reassure him this is fantastic!
2. They. Are. Tired. All. The. Time. I’m not even kidding. Gabe sleeps about 9-10 hours a night, plus an hour nap every day, sometimes 2 naps! If he does any kind of physical labor, it literally takes hours of energy away from his body. Every day feels like he just ran a marathon.
3. Chemo really, really, really stinks. Think tingling and numbness in your hands, fingers, and toes. Freezing cold sensation when eating or drinking room temperature foods. Muscle pain and weakness when walking or chewing food. Think having to know what your blood counts are every week, having people stick you with needles nearly every day!
4. Radiation really IS as difficult as they say. Burned skin, mucusy discharge, and bleeding are just a few side effects. Because my husband recieved radiation in a delicate area, he has even more difficulties I can’t mention on a public blog. The symptoms last for weeks after the last treatment.
5. They worry about the future. No matter how good their prognosis is, IT’S STILL CANCER. That means there is still fear of cancer spreading, or recurance of cancer, or serious illness from cancer treatments. They wonder if they will be able to return to work as they once did, and how they will pay the mounting medical bills.
6. They miss what their life used to be. They miss the freedom to go away for a few days vacation instead of being “chained” to the cancer center. They miss feeling good, playing with their kids, food tasting good, working full time, sleeping soundly…there are so many more things my husband and I miss, we couldn’t possibly list them all!
7. They feel lonely. When friends and family first find out you have cancer, you will feel overwhelmed by their support and love! In time, however, some will get used to the idea you have cancer. For them, life is still going on as normally as can be, and you feel a little left behind. Many times loneliness is there, despite continued love and support, merrily because friends can’t go to your appointments with you, feel your pain, or hook up to your IV’s with you. Loneliness, to some extent, is unavoidable for a cancer patient.
8. It’s hard for their families. A spouse is going to worry more about the future than the cancer patient will worry. The added stress of caring for a loved one who is suffering through treatments along with average daily stresses can easily overwhelm. The fear of losing their loved one is never far from their thoughts. Older kids may struggle with extra responsibilities and having to back out of social activities in order to help their parents.
9. Preventative treatments don’t feel any less painful or any less scary than treatments given in desperation. Many times I’ve heard, “but aren’t his treatments preventative?” Well, yes, but he’s going to feel the chemo and radiation just as if it were not a preventative measure.
10. Lastly, a cancer patient won’t tell you that his entire outlook on life has changed. Things that were important yesterday, are no longer on the “to-do” list today. A cancer patient sees more clearly what is truly important in life.
There are several other truths my husband will GLADLY tell anyone who wants to listen. God has been good to us through this cancer trial! He has provided every single need. We have been overwhelmed by friends and family who love and support us. We all have enjoyed Gabe being home more. Gabe is loving his guitar more every day. And lastly, this jourey is nearly over!
Really, I think Gabe believes that everything has been truly wonderful. He chooses to look at the positives and the blessings, and to cast the negatives behind him. This healthy perspective has been because of God’s Grace. The next time I hear him smoothing over how he’s really doing, I’m going to just keep my mouth closed.